Vollständiger Abstract
Worum geht es in dieser Arbeit?
Patients with mycosis fungoides (MF) or Sézary syndrome (SS) may experience visible lesions, severe itch, sleep disturbance, body temperature dysregulation and depression. In this international study, 73 patients completed a symptom diary and questionnaires relating to fatigue and health-related quality of life [HRQoL: the MF/SS-cutaneous T-cell lymphoma QoL measure (MF/SS-CTCL QoL)]; 24 care partners also completed an HRQoL questionnaire. Patients reported a high symptom burden that differed between MF and SS, with a moderate impact on HRQoL. This is the first study to identify which symptoms of MF/SS compromise different aspects of both patients’ and care partners’ HRQoL. Addressing specific skin symptoms may improve patients’ fatigue, sleep and overall HRQoL and care partners’ HRQoL.
Bibliografischer Nachweis
Publikationsdaten
- Autor:innen
- Julia J Scarisbrick, Larisa Geskin, Sima Rozati, Erika Morsia, Koen D Quint, Amy Musiek, Arvind Arumainathan, Jennifer DeSimone, Richard Cowan, Antonio Giordano, Michi M Shinohara, Cristina Muniesa, Ramon M Pujol, Maria C Goldaniga, Silvia Alberti-Violetti, Kayane Mheidly, Alessandro Pileri, Claire Esler, Luca Nassi, Susan Thornton, Kerry Sandilands, Angela Williams, Annabel Bowden, Jennifer E Dent, Miriam Teoli
- Quelle
- British Journal of Dermatology
- Publikation
- 2026-01-01
- Band / Ausgabe
- Nicht angegeben
- Seiten
- Nicht angegeben
- ISSN / ISBN
- 0007-0963, 1365-2133
- Zitationen
- 0 laut Crossref
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- 0 hinterlegt
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Zitierfähiger Nachweis
Julia J Scarisbrick, Larisa Geskin, Sima Rozati, Erika Morsia, Koen D Quint, Amy Musiek, Arvind Arumainathan, Jennifer DeSimone, Richard Cowan, Antonio Giordano, Michi M Shinohara, Cristina Muniesa, Ramon M Pujol, Maria C Goldaniga, Silvia Alberti-Violetti, Kayane Mheidly, Alessandro Pileri, Claire Esler, Luca Nassi, Susan Thornton, Kerry Sandilands, Angela Williams, Annabel Bowden, Jennifer E Dent, Miriam Teoli (2026). Patient and care partner burden in cutaneous T-cell lymphoma using disease-specific measures of symptoms and health-related quality of life. British Journal of Dermatology. https://doi.org/10.1093/bjd/ljag266
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