Annals of Clinical and Translational Neurology
Data‐Driven SuStaIn Model of Disability Progression in Amyotrophic Lateral Sclerosis
ABSTRACT Objective To determine whether ordinal Subtype and Stage Inference (SuStaIn) applied to routine ALSFRS‐R item scores can identify reproducible disability progression patterns in amyotrophic lateral sclerosis (ALS) and provide clinically meaningful staging. Methods We analysed baseline ALSFRS‐R item responses from 866 PRO‐ACT participants. Ordinal SuStaIn inferred subtype‐specific sequences of functional deterioration and assigned each participant to a subtype and a SuStaIn‐derived functional stage. Longitu …