British Journal of Dermatology
Patient and care partner burden in cutaneous T-cell lymphoma using disease-specific measures of symptoms and health-related quality of life
Patients with mycosis fungoides (MF) or Sézary syndrome (SS) may experience visible lesions, severe itch, sleep disturbance, body temperature dysregulation and depression. In this international study, 73 patients completed a symptom diary and questionnaires relating to fatigue and health-related quality of life [HRQoL: the MF/SS-cutaneous T-cell lymphoma QoL measure (MF/SS-CTCL QoL)]; 24 care partners also completed an HRQoL questionnaire. Patients reported a high symptom burden that differed between MF and SS, wit …